On Managing Health Data Programs: Some Thoughts After the Health Datapalooza Conference

As an extension of my own research and consulting on big data project planning and management, I wanted to improve my understanding of how data governance and program management practices impact how medical and health data are used.

Do Health Data and Metadata Ownership Licenses Help or Hurt Innovation?

We see how the current web of licensing agreements is hobbling cable TV operators as they find themselves having to compete more and more with web based streaming services. Isn’t it also possible that similar restrictions regarding health data and metadata might provide similar challenges to creating new and beneficial products and services from shared data?

Can Government Regulations Drive Improvements in Enterprise Data Governance?

Government regulators need to be sensitive to the costs of complying with and overseeing the regulations they impose on data management, as do the organizations that are regulated. Costs related to data oversight, quality control, standardization, security, and privacy all need to be considered in comparison with the quantitative and qualitative benefits that will be generated.

Should Clinical Trial Data Sharing Be a Precondition for Refereed Journal Article Acceptance?

To appreciate some of the implications of the recent proposal by the International Committee of Medical Journal Editors (ICMJE) to make consideration of journal article acceptance contingent upon the author’s agreement to share de-identified clinical trial data with other researchers, as reported by NPR, some context is appropriate.

Introduction to PLANNING AND MANAGING BIG DATA PROJECTS: SELECTED ARTICLES

I began researching “big data project management” when I started seeing publications and online discussions concerning big data project “failures” being attributed to the classic reasons for project failure such as scope creep, poor stakeholder engagement, and inadequately understood requirements.