All in Open Data

On Managing Health Data Programs: Some Thoughts After the Health Datapalooza Conference

As an extension of my own research and consulting on big data project planning and management, I wanted to improve my understanding of how data governance and program management practices impact how medical and health data are used.

Do Health Data and Metadata Ownership Licenses Help or Hurt Innovation?

We see how the current web of licensing agreements is hobbling cable TV operators as they find themselves having to compete more and more with web based streaming services. Isn’t it also possible that similar restrictions regarding health data and metadata might provide similar challenges to creating new and beneficial products and services from shared data?

Should Clinical Trial Data Sharing Be a Precondition for Refereed Journal Article Acceptance?

To appreciate some of the implications of the recent proposal by the International Committee of Medical Journal Editors (ICMJE) to make consideration of journal article acceptance contingent upon the author’s agreement to share de-identified clinical trial data with other researchers, as reported by NPR, some context is appropriate.

Needed: Better Integration of Project Management and Data Management

These days, still, when you read about big data or if you attend conferences or webinars you’re much more likely to read about products and tools. You don’t hear as much about “back room” management issues you need to address to make sure all the members of the project team are sharing information and marching in the same direction.